As some of you know that after 3 or so years of struggling in a health sense I finally have a diagnosis & I have been put on the right medication to treat this. I have been diagnosed with Behcet’s Syndrome. Only 1 in 100,000 in the UK has this extremely rare and complex disease – basically it’s a lifelong illness that involves inflammation of the blood vessels throughout the body. Behcet’s is currently treatable but not curable.
Now my meds have been fine tuned, my “flare ups” will be greatly suppressed!! I want to take this opportunity to thank everyone who has asked how I am on a regular basis and also for club organisers etc for their patience whilst I‘ve sometimes been sitting on a stool at gigs - hopefully that shouldn’t happen now. I still feel I have lots more to give before I’m ready for my rocking chair !!
I have also liaised with the charity Behcet’s Syndrome Society and offered my support to raise much needed funds. I have set a bar which I hope to smash with help from friends to raise £10,000 for the charity. We will be running 2 extra day events throughout 2018 (one in Birmingham & one in Basildon) to help raise these funds and also the awareness of Behcet’s, if you / your club / work place etc could offer any help towards this please get in touch !!
Please note this will not stop us raising money for other charities we are involved with.
If you would like to donate to my just giving page then please follow the link below.
Thank you for your support